It's certainly called for on many occasions, including the one at hand. Last night, a couple of nurses were annoyed with us for insisting, to no avail, that the Atropine should be continued. We were told that it was never given with chemotherapy. This morning, the doctor wrote orders for it to begin once more, and the accompanying nurse was annoyed when Brianna mentioned the previous evening's confusion. Feeling that our own research is necessary, we've located two articles showing that the mere addition of Atropine is probably ineffective at this point. We hope these up-to-date recommendations will be implemented if the Atropine fails to improve the situation.
Today's CBC gives us reason for renewed optimism. The WBC rose to .3; platelets rose from 18K to 20K; HGB increased too. This is a very good sign. When Jordan begins to produce his own blood cells, it's a very big deal! The LDH dropped by almost two thousand points, as well.
Jordan was diagnosed on Jan. 10, 2008, after five long weeks with an unknown, untreated, life-threatening illness, which turned out to be metastatic alveolar rhabdomyosarcoma (mets ARMS).
Bonnie
Hello, I am Bonnie, mom of Jordan, who was born 3/16/82. Thank you for your visit, and please drop in again and again.
Jordan
Until 12/07, Brianna and I were living and working in China, with big plans for the future, when wham! out of nowhere, everything changed. My job now is to rub out rhabdo. Many thanks to all who are in the trenches with me.
Brianna
Hi, my name is Zhou Xui Qiong, but most people call me Brianna. Jordan and I were married in China, 9/19/06. We welcome you to our site.
7 comments:
So glad he is producing some RBC, and may the tension cease .
Hi Bonnie,
I'm so glad Jordon's counts are doing better!God Bless your family and our love and prayers are always with you!
Warm Regards,
Deb
www.cllcfriends.com
It is so good to be able to get up and walk. And its good that some levels are getting better. Lets keep it up.
Liz
Bonnie,
The news is encouraging- your doing what needs to be done, annoyed nurses or not(And I'm a nurse!).With your winning ways, you will have them all smiling again in no time. Don't worry about that. We are praying for some stability in Jordan's condition so he can begin to gain strength. You are all an inspiration to our family. Take care. Love, Louise
The trip to Seattle?? I wondered if that was still a possibility or not. Glad to see some improvement, what welcome news. The one thing I regret about when Jackson was sick was that it took me so long to find my "voice". Getting his port accessed was a complete nightmare everytime, because the nurses refused to let me hold him. When I finally got brave enough to stand up to some pretty strong personalities things went better, but I hate thinking of all the torture I let Jax endure. However, that being said you need those people so... DIPLOMACY is for sure the word of the week!! You can do it.
wazz up office elder. where's our stash? it about the end of the month now. kidding... i don't know if you still remember me but we had some chats during our time @ san pablo mission. im now bro. calayo. and im just dropping by to say "kamusta kapatid".. be strong brother, i know you are. keep us posted.
-Rodel D'Vicor D.Calayo (Elder Calayo PSPM 2001-2003 mar) Philippines
What a great cheering squad we have! Thanks, joyful Julie, darling Deb, lovable Liz, loyal Louise, brave-hearted Becky, and bold, bilingual Bro. Calayo! :)
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