Wednesday, April 2, 2008

Ladies and Gentlemen, We Have an Appointment

But it's not until April 16th, a long time from now. We had our hearts set on an earlier date, as you know. The next treatment should begin next week, and we really want guidance in switching it to something more effective against this rhabdomyosarcoma beast. I guess we'd rather have the same old treatment than none at all though. And our doctor is leaning toward none at all, until after the Hawkins consult. Each treatment shows some benefit, short-lived though it is. The soaring LDH always comes down for a couple of weeks afterward, and we can't imagine what would happen if it were left unchecked for an extra week and a half. The doctor's pretty adamant about waiting, but he did say he'd take the BMB results into consideration. Fair enough, we're just as adamant, and will take it into consideration, too.

Platelets dropped to 7K, so another transfusion is on tap for today. WBc's were at .3 on Tuesday, but slipped back down to .2. Even though he still has a fever, they're stopping the antibiotics for a bit to try to get them to edge upward.

The second gaming session went well again. And we played the first ever April Fool's prank on our unsuspecting Brianna, a confirmed fan of sushi. A few weeks ago, Jordan requested rice krispie treats. They didn't do too much for him after all, but Brianna surprised us by taking a liking to them. She said they look like a food her parents made in the bakery they owned when she was a child. I scoured the internet in search of a tricky snack to send over with Shane for last night's party, and came up with the perfect recipe... mock sushi made with rice cereal. Mwahahahaha, it worked! Brianna got April fooled.