Wednesday, April 2, 2008

Ladies and Gentlemen, We Have an Appointment

But it's not until April 16th, a long time from now. We had our hearts set on an earlier date, as you know. The next treatment should begin next week, and we really want guidance in switching it to something more effective against this rhabdomyosarcoma beast. I guess we'd rather have the same old treatment than none at all though. And our doctor is leaning toward none at all, until after the Hawkins consult. Each treatment shows some benefit, short-lived though it is. The soaring LDH always comes down for a couple of weeks afterward, and we can't imagine what would happen if it were left unchecked for an extra week and a half. The doctor's pretty adamant about waiting, but he did say he'd take the BMB results into consideration. Fair enough, we're just as adamant, and will take it into consideration, too.

Platelets dropped to 7K, so another transfusion is on tap for today. WBc's were at .3 on Tuesday, but slipped back down to .2. Even though he still has a fever, they're stopping the antibiotics for a bit to try to get them to edge upward.

The second gaming session went well again. And we played the first ever April Fool's prank on our unsuspecting Brianna, a confirmed fan of sushi. A few weeks ago, Jordan requested rice krispie treats. They didn't do too much for him after all, but Brianna surprised us by taking a liking to them. She said they look like a food her parents made in the bakery they owned when she was a child. I scoured the internet in search of a tricky snack to send over with Shane for last night's party, and came up with the perfect recipe... mock sushi made with rice cereal. Mwahahahaha, it worked! Brianna got April fooled.

8 comments:

Julie said...

Hooray, for the game name and the mock sushi, now everything else needs to work as well as that did . So glad that there is an appointment made and maybe new ideas to help. Prayers are with you all !!!!

Anonymous said...

We just wanted you to know that we are thinking of Jordan and Your Family and keeping you all in our prayers.
The Callahan Family (all of us)

Julie said...
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LAURA said...

Glad you got an appointment--sorry it's so far away. Hang in there until then! I know Jordan's got amazing strong women to help keep his spirits up and be his advocates when necessary. Thinking of and praying for all of you.

Becky Noftle said...

Trust your instincts about his treatment, the spirit will help you, help Jordan. I love April's Fool's day---do they have that in China Brianna?

Anonymous said...

What a good little chuckle. I am glad someone got April fooled (Erin just isn't old enough to understand). I am glad you have an appiontment. Amy it all go well.
Liz

justme said...

So glad you did get an appointment but sorry it's so far in the future.

I'm thinking of and praying for you and your family all the time.

Hang in there and take care,
Sally

BTW, great (and clever) practical joke! haha

Bonnie said...

Hey guys, we're following your advice as well as we can - we're hangin'. And your encouragement keeps the rope from breaking.
Good to see you, Callahans, and Sally.. Julie, Liz, Laura, Becky, et al, same goes for you. Oh, and I don't think they have April Fool's pranks, per se, in China. But Brianna has a streak of it in her personality. She's quite a little tease.