So I was supposed to leave for FL via UT today. But I just couldn't tear myself away. Brianna and I are drinking pineapple and V8 juice in the waiting room while Jordan gets a little shuteye. He had two units of packed red blood cells yesterday, his 18th such transfusion. Brianna checked our records, and he's had 25 transfusions of platelets so far, in case anyone was wondering.
I know I said the pain was under control on Sunday, but I was wrong. Jordan isn't ambulatory at this time because pain is too great upon attempting even a few steps. Keeping the pain at an acceptable level has been a constant challenge. He is on a titrated morphine drip. It was initially set at 1 mg/h, but it's now up to 6.5 mg/h, with bolus additions as needed. The doctor says the pain should be gone in the next day or so. His WBC's are up to .6 today. If it continues to climb, maybe this bone pain will have been worthwhile.
Dr. Z. was able to talk with the specialist, Dr. Hawkins, yesterday. Both agree that we should hold off on treatment until after next week's consultation. The whole diagnosis is up for review. We asked what should be done for Jordan while we wait, and Dr. Z. said that we'll just keep the pain in check and transfuse as needed. Fevers are still a problem, so that's why we're camping out here, enjoying St. Luke's hospitality. They really have been good to us here. We owe them a lot...and we're not just talking money.
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9 comments:
Well... sounds like we can celebrate a few things, like WBC's up and the possibility of less pain in the next day or two, hope, hope!! Lets pray for a restful week for Jordan and maybe some answers just 7 days away in Seattle. Jordan must have done something right to have 2 great women at his side. I do hope we get a chance to meet Briana someday soon! We will continue to pray for all of you. Louise
My prayers and thoughts are with you all.
Liz
Bonnie-
I am glad you listened to JoLyn's advice about not going away right now.I would have said the same thing! Your family appreciates your cheer and strength.
You have no idea how much I think of all of you right now. I pray for you daily and marvel at all that Jordan is enduring.Our family sends love your way!!!
Iris
I know my wish is the same as many others----Jordan if I could take the pain away for you--if we could all just sign up for days--like our turn or something we would.
What would we do without all the prayers? Thank you, Louise, Liz, Iris, Becky, and everyone! The pain level rose and fell throughout the day, but by the time we left last night, it was at a 2. Much better! Pray it stays there, or, better yet, leaves altogether!
One thing, Iris, don't think JoLyn's the one who advised me not to go to FL. It was my own heart. She validated my concerns. I don't know why I was so worried about changing my plans, everyone has been perfectly understanding and supportive!
Love to all, - Bonnie
Yes, Bonnie we do understand, our prayers are with you and Jordan and the Dr.'s , that they can help make all this better ! We will miss you, because of you being you!! We love you and we know they need your love strength to get through this. So glad to see the pain is some better , may it continue to diminish!!
Oh Bonnie, that was me, not Amy, Love ya JulieB, but she sends her love and support too !!!!
I've been reading your blog and keeping tabs on Jordan. Sounds like he's got some special girls taking care of him! We're praying for you! Brenda (Andersen) Miles
Thanks, JulieB, I'm missing all of you, and sending birthday wishes to Mom from the state capital of Idaho. Not impresssed? Hmmm, c'mon, it's the capital! And Brenda, I've read some of your blog too, and man, are you and your family ever adorable! Thank you for the prayers. And please, everybody, keep it up... up... up!
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