When Jordan was eight years old, his grandpa spent several months in a hospital, located about three hours away from our home. We loaded up the family station wagon three or four times with our then six sons, telling them that we were going to Seattle. On one of our last visits before grandpa was able to return home, two-year-old Colin finally found the words to ask the burning question, "Who's Attle?? :)
For all who have hoped with us that we would See Attle this week, or more specifically, that we would be able to see Dr. Hawkins, we need to let you know that it was necessary to cancel the trip. We did, however, participate in a conference call, which included Jordan, Brianna, both Dr. Zuckerman and Dr. Hawkins, Jordan's parents, and other hospital personnel. It has been recommended, (and much thought and prayer are being given to the recommendation), that it is time to shift to a palliative approach to treatment.
You will be glad to know that the pain is under control once again. We would also like for you to know that we are in awe over Jordan's calm strength, his gentle consideration of Brianna, and all others, and the steady, unfailing courage we see in him each day. Don't discount our admiration for him because he is our beloved Jordan, for many have spoken to us of his remarkable attributes and disposition in the face of this tremendously difficult trial.
Jordan was diagnosed on Jan. 10, 2008, after five long weeks with an unknown, untreated, life-threatening illness, which turned out to be metastatic alveolar rhabdomyosarcoma (mets ARMS).
Bonnie
Hello, I am Bonnie, mom of Jordan, who was born 3/16/82. Thank you for your visit, and please drop in again and again.
Jordan
Until 12/07, Brianna and I were living and working in China, with big plans for the future, when wham! out of nowhere, everything changed. My job now is to rub out rhabdo. Many thanks to all who are in the trenches with me.
Brianna
Hi, my name is Zhou Xui Qiong, but most people call me Brianna. Jordan and I were married in China, 9/19/06. We welcome you to our site.
18 comments:
Dear Bonnie,
I admire your strength and you are the Best mom ever!I also admire Jordan and Brianna and how they face adversity.I'm so glad Jordan's pain has let up and I hope each day will be filled with memories and free from pain.
You know I love you and am here for you if you need me!
God Bless you and your whole family during this time,
Love Ya,
Deb
So glad to know where you are. I was thinking about your trip to See attle and was wondering if you needed a place to stay.
You have not heard much from me, but I have been lurking and reading your blog and praying and fasting for all of you.
Do you think you will be going to Seattle at some point?
Iris
Hi Deb and Iris. Our family feels the support and thanks everyone for it. There are no plans to reschedule the appointment with Dr. H. We'll be staying home.
Love, - Bonnie
Dear Bonnie, Jordan & Brianna,
How tender and sweet are your words, how kind and loving your family, what a blessing to you Jordan to be loved so much by two special ladies. You are in our thoughts and prayers always.
Having many times been a position to accept a miracle in my own life, I believe in them fully, I pray and cry out for many miracles for your family to come... I know that sometimes miracles come as peace to the heart that trusts God, and I am personally humbled to see His light and understanding in your examples.
You are ALWAYS in my prayers.
Jordan, I don't know you. Just reading what your mom says makes me want to say, "I love you, brother!" You are a great husband and son!
Bonnie, we are thinking of you often at our places of online retreat. Much love to you as well!
That "attle" anecdote was cute. Oh, sweet children to keep us all going. :)--Barb(abby76)
Bonnie,
I am so glad to hear that Jordan's pain has let up again! You, Jordan and Brianna are such an inspiration to me in the way you face one difficulty after another with great strength and courage. Keep up the good fight, and know that I continue to think of and pray often for all of you.
Sally
There are many things in life I don't understand, this situation is one of them. I DO know that Gods knows what Jordan is going through and he will bless Jordan and the family through this trial. We always pray for "thy will to be done", and I feel sure this is his will. Maybe someday we will understand why. Our prayers will continue- take care, Love, Louise
Prayers for all of you to have peace and comfort and for Jordan to keep on like he has, preferably with less pain though.
Prayers to each of you.... many prayers!!! Please let me know if there is anything I can do!! Much love and hugs goes out to you, across the distance!!!
Hello everyone. I just read Brianna's & Jordon's questions/answers again. Want to hear something funny? Jordan said his favorite clothes is his brown cargo pants. Well, Jim's favorite clothes was also his brown cargo pants. He wore them around for years! Eventually he cut them off just below his knees & he really wore them out. I didn't mind him wearing them @ home but when we went out that was a different story. I would make him change his pants. He was always trying to go out to eat or to the store or somewhere wearing those but I wouldn't let him. Eventually I grew to really hate that pair of pants. I tried for a very long time to get rid of them. The best place was in the trash but no, that offended him. I tried to give them away to Good Will, he took them back. I did everything I could think of to get rid of those horrible pants! He kept bringing them back out & would walk out of the bedroom wearing them. They were his FAVORITE although I could never figure out why. Well, guess what, it has been almost 6 years since he passed away, I STILL HAVE THOSE PANTS!!!!!!!!
What can I say that hasn't already been said. I admire all of your strength, and I pray for you each day. Little Erin does wonder who cousin Jordan is though, but through the prayers she has come to love him as well.
Liz
My heart and prayers continue to go out to you. Your family has been a blessing and an inspiration to me. I have been uplifted and strengthened by your love and dedication to one another and your courage in the face of Jordan's unrelentless illness. You are all heroes to me.
So glad to hear that the pain has calmed some. Jordan, you and your sweet wife and family remain in our hearts and prayers.
Dearest Family,
Just letting you know that you are in our thoughts and prayers. Your names are on the prayer roll in the Fresno Temple and while there we participated in a beautiful prayer asking for comfort and peace for each of you. We are glad you can be together at home, surrounded by family and friends.
Becky and Ray
Each message has added solace to our pierced hearts, pierced by this unexpected shaft of sorrow. Strangely, even though we cry more often than we'd choose,, we also feel a comforting assurance that our tears will be forgotten someday, and that all will be made right.
Thank you, everyone, for yur continued love and encouragement, and most of all, for your prayers!
Oh Bonnie I am so sorry. It is good to see you and Jordan and Brianna so strong through all of this. If you need anything you just holler, in the meantime I will give all I can give and give everyone a huge hug.
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